THE carer of a six-year-old girl with complex needs has organised a family fun day to raise funds for a new wheelchair.
Bella, who lives at home with mum Katie, dad Karl and little sister Emily, was born with a gene variation called SCN2A, which her parents say is 'simply a spelling mistake in her DNA'.
The missing gene means Bella suffers from epilepsy, developmental delay, movement disorder, hypotonia and gastrointestinal complexities, resulting in her requiring 24-hour care including waking night shifts.
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Her wheelchair is currently unfit for purpose, as going over bumps can bring on seizures when she sits in the chair.
Jamie Weatherhead, 25, has been caring for Bella for a year. She said: "She's a courageous, beautiful, happy little girl whose smile lights up any room she's in.
"We're looking to raise money for the chair because she needs it, but it's expensive. We expected a quote of around £3,000, but have been told it will cost £5,255."
To cover the amount, Jamie had the idea to start a family fun day, with all money raised from the event going towards the cost of Bella's new wheelchair.
She said: "She's a happy little girl and having a day like this in the summer would make it fun for her to be able to raise some money."
The 25-year-old said she experienced the 'goodwill' of the community after her family held a fundraising day for her sister, Tamara, in 2009, to send them on a dream holiday to Florida, and she wanted to return the favour.
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Hundreds of people turned up to the event for 12-year-old Tamara, who was suffering from complications related to her cerebral palsy, raising £4,000.
Jamie continued: "It means the world to be able to give back to a little girl who deserves to be comfortable and happy, like Bella."
The event, which will be held on August 31 from 2pm to 6.30pm, will feature Disney princesses, as Bella is a 'huge' Frozen and Moana fan, in addition to fish and chips, a bouncy castle, slush puppies, tombolas, a DJ and more.
The fun day is supported by Basingstoke charity, Forever Smiling, which covered the cost of Sycamore Community Hall to host the event, as well as the Teddy Bear Run, which helps to make memories for life-limited children.
Jamie says they are still looking for a face painter and donations for the tombola, which can be dropped off at J&K Care Specialists in Unit 2, Prisma Park, Berrington Way, Basingstoke, RG24 8GT on weekdays from 9am to 5pm.
To donate to Bella, visit gofund.me/995a7bd3. Alternatively, you can contact Jamie by emailing jamieweatherhead@hotmail.co.uk.
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